Study: Individuals With Developmental Disabilities Experience Healthcare Disparities

September 11, 2017

COLUMBUS, Ohio – In a new study, researchers with The Ohio State University Wexner Medical Center’s Nisonger Center found significant disparities between individuals with and without developmental disabilities in health status, health care quality, utilization, access to care and unmet healthcare needs.

A telephone survey of 42,876 adults and 10,122 proxy interviews for children found that, when comparing age groups, children and older adults with developmental disabilities experienced the greatest disparities in unmet healthcare needs.

The findings, based on an analysis of data from the 2015 Ohio Medicaid Assessment Survey, will publish online today in the Annals of Family Medicine. Among children 0-18 years of age with developmental disabilities, 14 percent reported problems receiving needed care, compared to 2 percent of children without developmental disabilities. Among adults age 65 and older, 50 percent of those with developmental disabilities reported one or more unmet health care needs, compared to 17 percent of those without such disabilities.

Key findings include that adults with developmental disabilities were less likely to have a primary care physician that spends enough time with them, and older developmentally disabled individuals were less likely to have clinicians who explained things well.

“These findings highlight the importance of disability competency for health care clinicians,” said lead author Jessica A. Prokup, a third-year medical student at Ohio State’s College of Medicine. She also is a LEND fellow (Leadership Education in Neurodevelopmental Disabilities) at the Nisonger Center, which is part of Ohio State’s Neurological Institute. “Based on our findings, we urge medical schools to incorporate specific training in developmental disabilities into their undergraduate medical curriculum to help reduce these health care disparities.”

Other Ohio State researchers involved in this study include Rebecca Andridge, Susan M. Havercamp and Emily A. Yang.

Funding for this research was provided by the Ohio State University College of Medicine Roessler Research Scholarship and the Centers for Disease Control and Prevention Cooperative Agreement Number 2U59DD000931-04.

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Media contact: Eileen Scahill, Wexner Medical Center Media Relations, 614-293-3737 or Eileen.Scahill@osumc.edu