Official Title: Answer ALS: The Individualized ALS Treatment Initiative (IATI)
Purpose of the Study: The purpose of this research is to create a large repository of cells, bio-fluid samples (blood and spinal fluid (optional)), and cell lines for ALS gene identification. Samples and information will be used mainly to study ALS and other motor neuron diseases. This will be combined carefully with collected measures of the pattern of the symptoms people with ALS have and how these change over time. This research is a stepping-stone to understanding ALS and through AnswerALS.org.
- Diagnosis of Amyotrophic Lateral Sclerosis (ALS)
- Age 18 and over
Study Status: recruiting participants
Principal Investigator: Stephen Kolb, M.D., Ph.D.
Contact: Ify Okoh, 614-688-7837, Ifeanyi.email@example.com
Funding/Study Sponsor: Packard Center for ALS Research at Johns Hopkins and ALS Finding a Cure